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The Ehlers-Danlos Society

Organization Details

Organization: The Ehlers-Danlos Society

About:

The Ehlers-Danlos Society is a global community of patients, caregivers, health care professionals, and supporters, dedicated to saving and improving the lives of those affected by the Ehlers-Danlos syndromes, hypermobility spectrum disorders, and related conditions.

We support collaborative research and education initiatives, awareness campaigns, advocacy, community-building, and care for the EDS and HSD population.

Our goals are world-wide awareness—and a better quality of life for all who suffer from these conditions. Research is at the center of what we do, so that one day we will have a cure. Our strength begins with hope.

The Ehlers-Danlos Society was originally  established as a nonprofit organization in 1985 as the Ehlers-Danlos National Foundation (EDNF) by Nancy Hanna Rogowski (1957–1995).

Location

Address:
P.O. Box 87463
Montgomery Village , MD  20886
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Related

Disabilities