Organization: National Sarcoidosis Resource CenterAbout:
The National Sarcoidosis Resource Center is a non-profit organization formed to heighten public awareness and to educate people about this disease, which is often chronic and disabling. It grew out of the need for people with Sarcoidosis to share information and to support each other. The center provides information to people throughout the U.S., Canada, Europe, and elsewhere, and has a registry of over 24,000 patients. The center receives patient referrals from the American Lung Association, NORD, NIH, physicians, and hospitals. Other services include physician referrals, seminars, speakers, and assistance in the development of self-help groups.