Melanie Whetzel, Lead Consultant – Cognitive/Neurological Team
Just last month, I finished reading Very Late Diagnosis of Asperger Syndrome (Autism Spectrum Disorder) — How Seeking a Diagnosis in Adulthood Can Change Your Life by Philip Wylie. What a wealth of information!
As the title suggests, this guidebook focuses on very late diagnosis of autism, what is involved, what has led up to the diagnosis, and how to cope with it. Included are chapters entitled “The Advantages and Disadvantages of Diagnosis,” “Common Reactions to Very Late Diagnosis of Autism Spectrum Disorder,” “The ‘Coming Out’ Process,” and “How to Live Well with Very Late Diagnosis of Autism Spectrum Disorder.” Information also encompasses co-existing mental health impairments, available supports, and strategies to help newly diagnosed individuals move forward.
At JAN, we receive inquiries from many older individuals who either suspect that they have autism, or have obtained a recent diagnosis. Sometimes they just aren’t sure what to do. I believe I now have a better understanding of the process people have gone through, what their concerns are certain to be, and how we can best assist them.
The next one on my list is Women and Girls with Autism Spectrum Disorder Understanding Life Experiences from Early Childhood to Old Age by Sarah Hendrickx.
Sarah Small, Consultant – Cognitive/Neurological Team
I recently read an article in Counseling Today titled Reconsidering ADHD by Laurie Meyers. She talks about how historically the stereotype for Attention Deficit Hyperactivity Disorder (ADHD) has been a young child who cannot sit still or pay attention and often gets in trouble. However, in reality ADHD can affect anyone and manifest at different stages in life. This means that sometimes an individual may not receive an actual diagnosis until they are in adulthood. She states that ADHD can often be hard to diagnose as it can also resemble other mental health impairments.
She goes on to discuss that even though there is still a lot to learn about ADHD, researchers tend to believe it is a cognitive impairment that affects the brain’s executive functioning. This can cause issues with concentration, hyperactivity, impulsivity, and other signature qualities associated with the condition. Laurie breaks down her article by looking at some challenges associated with childhood, high school to college transition, and adulthood. Throughout, she shares information from a variety of counselors and their personal experiences working with clients who have ADHD and some concepts and techniques that can help individuals adapt and cope.
I was intrigued by this article because as a member of the cognitive/neurological team here at JAN I frequently receive calls regarding ADHD and accommodations. We typically see the condition and how it affects adults at work, so it was interesting to read some perspectives on how it also affects individuals during childhood and school years. It was a good reminder that no diagnosis has a cookie cutter effect.
Matthew McCord, Consultant – Mobility Team
I recently watched a video on Youtube video by Extra Credits titled, Because Games Matter – A Better Vision.
In this video, the Extra Credits team details the story of a young woman named Sara Winters who was born with ocular albinism. This rare vision disorder caused her to have a visual acuity of 20/200, making her legally blind. However, her ophthalmologist made the suggestion that she play video games as a form of therapy to help her eye sight improve. I found this video interesting not only as someone who considers himself a gamer, but also because it illustrates the importance of keeping an open mind to unconventional solutions to problems. For Sara, game therapy helped her brain understand the limited information her eyes could gather and her visional acuity improved to 20/100. Sara’s testimony illustrates that even unorthodox options can be effective, and when it comes to reasonable accommodation options, being effective is what really matters.
Tracie DeFreitas, Lead Consultant — ADA Specialist
As a self-proclaimed ADA geek, I gravitate toward literature and on-line resources that analyze timely and complex ADA and FMLA issues. I know, that sounds riveting, right? But, it can be. New workplace challenges develop every day with each unique disability employment related situation. Reading about recent employment cases and perspectives on enforcement agency guidances and activities satisfies my inner nerd, and also enables me to offer JAN customers useful information to support their ADA and FMLA compliance efforts. There are a number of go-to resources for ADA and FMLA information, including Bloomberg BNA’s Labor & Employment Law Resource Center and the National Employment Law Institute’s publication, Resolving ADA Workplace Questions, but for weekly content, I’ve been reading a couple of trusted legal blogs. For example, I subscribe to the Disability, Leave & Health Management blog published by the law firm, Jackson Lewis. This blog addresses some of the more difficult legal and practical issues employers face when managing disability, attendance, and leave, among other issues. Another favorite blog is FMLA Insights authored by Jeff Nowak, co-chair of Franczek Radelet’s Labor and Employment Practice. FMLA Insights provides insight and analysis on the FMLA, ADA, and similar employment legislation and was selected as one of the Top 100 Legal Blogs of 2016 by the ABA Journal. Both blogs are excellent resources for practical compliance advice on ADA and FMLA issues.
Kim Cordingly, Lead Consultant – Self-Employment Team
My academic background is in economic geography, so I’m currently reading a book by Maureen Molloy and Wendy Larner entitled Fashioning Globalisation: New Zealand Design, Working Women, and the Cultural Economy. At first glance, this book may appear to have little to do with individuals with disabilities starting small businesses. However, I’ve been thinking about how their theoretical framework and research can help us better understand the experiences of women entrepreneurs with disabilities in a U.S. context. Malloy and Larner describe their project in this way: “The book is an attempt to rethink the relationship between changes in the global cultural economy over the past 20 years and changes in middle-class women’s working lives through the exemplary case of the New Zealand designer fashion industry.” At JAN, we are often contacted by individuals with disabilities who fit into the category of “independent artisans,” participating in their creative and local economy. Organizations such as the Women’s Rural Entrepreneurial Network (WREN) in New Hampshire are an example of how entrepreneurial networks can promote and support local women owned businesses that fit into this category. All areas of the U.S. are undergoing distinct economic shifts that affect women’s livelihoods in varied ways. For women with disabilities who pursue self-employment or starting businesses, they are deeply affected by these changes — in terms of the type of businesses they choose to start, what types of networks can support these businesses, and how they think of themselves in their role as a business owner. Work in geography addresses these intersections and how place, space and scale help us better understand women’s experiences in this evolving economic landscape.
Beth Loy, Principal Consultant
Recently I read an article by Damian Sian, who works as the Senior Web Accessibility Advisor for Princeton University. Sian talked about how he got into the accessibility field and the experience he brought from his marketing and test development background. He mentioned two interesting points in his interview that we also find important and challenging at the Job Accommodation Network. First, he discussed the difficulty of making mathematical representations of data accessible. Second, he talked about the importance of collaboration. This article reminds us that the field of accessibility will make great strides if organizations work together to solve accessibility challenges.
Teresa Goddard, Lead Consultant – Sensory Team
A key part of a JAN consultant’s job is finding new and easier ways to do the simple ordinary tasks that most of us take for granted. One of my very first calls here at the Job Accommodation Network involved a question about an intern with limited use of one hand, who was having trouble tying off garbage bags. While it was a small part of the job, the intern wanted to be able to do it independently. A therapist who was working with the young woman called me, a brand-new consultant, looking for a device designed to close garbage bags with one hand. I couldn’t find anything like that in the JAN database. I asked if I could call her back and made my way down the hall to talk to the most knowledgeable product guru I could find, an experienced consultant named Eddie. He listened to the whole story with a quizzical expression, raised his eyebrows and said one simple word, “tape.” He went on to explain how to precut and preset pieces of tape for ease of use with one hand.
Eddie’s lesson in looking for simple easy solutions has led me to look at everyday objects in a new way. Although I now take primarily sensory related calls here at JAN, I still like to look at the pencils, tape, and stacks of books on my desk with an eye to how they can be used as an accommodation. I like to read about new uses for household items as well. This has led to a fascination with how-to books. I recently picked up a second hand copy of Reader’s Digest Practical Problem Solver, which has a lengthy section called “Common Things with Uncommon Uses.” This consists of an alphabetized list of ordinary things like scarves, socks, and shower curtains that can be used in unexpected ways to simplify your life. There are 17 uses for tape listed. It may not be a lofty book, but it is jam-packed with ideas that I had never even considered. Did you know that wearing rubber gloves over your gardening gloves can keep your hands extra warm and dry on cold damp mornings? It is a simple idea that I will be passing on to my callers with temperature sensitivity. Do you have how-to books collecting dust on your bookshelf? Pick one up!
Linda Batiste, Principal Consultant
The Equal Employment Opportunity Commission (EEOC), the federal agency that enforces the employment provisions of the Americans with Disabilities Act (ADA), has been cranking out a lot of information in past few months, including some very important ADA-related documents. We use EEOC guidance every day in our work at JAN so I made time to read everything the EEOC published. For employers, the information provided in these documents can be extremely useful.
One of the most important documents is EEOC Enforcement Guidance on Retaliation and Related Issues, which explains the EEOC’s interpretation of what constitutes retaliation. According to the EEOC, retaliation is the most frequently alleged basis of discrimination so this should be a must-read for employers. In addition to retaliation, there’s something called interference under the ADA, which can occur with just one careless sentence from a supervisor. The EEOC’s publication provides the following example:
An employee requests an accommodation. In response, her supervisor tells her that she must try taking medication first or her request will not be considered. This is interference with the employee’s exercise of her rights in violation of the ADA.
Toward the end of the document, the EEOC provides promising practices for employers who want to reduce the likelihood of a retaliation or interference claim against them. The document is pretty long, but there are also a couple shorter, summary documents if you’re not inclined to read the larger document: Questions and Answers: Enforcement Guidance on Retaliation and Related Issues and Small Business Fact Sheet.
In addition to the retaliation document, the other documents the EEOC recently published include:
Proposed Enforcement Guidance on Unlawful Harassment, which is another serious problem for employers. If you want to review this document and comment on it, you have until Feb. 9, 2017.
The EEOC also publishes information for individuals with disabilities. The most recent document is called Depression, PTSD, & Other Mental Health Conditions in the Workplace: Your Legal Rights.
If you haven’t reviewed any of these documents, you might want to take a look at them – it’s a good way to pass the time on a cold winter day – or if you need information related to any of these topics, you can always give JAN a call!